I just wanted to give a quick update on Molly and today's trip to the geneticist. We were there for at least an hour, and they took a complete genetic history of our family tree. Then we chit chatted... and basically the doctor confirmed what we already knew:
- her spots are typical for people with McCune-Albright Syndrome (MAS)
- right now she doesn't have any other diagnostic features of the disease (bone or endocrine issues)
- until she shows other signs or symptoms of MAS, it doesn't make sense to put her through a battery of other exams and tests
- basically we'll just assume everything is just fine unless things change as she grows and develops
I have done a LOT of research and read a LOT of journal articles. A high proportion of kids with these spots develop other MAS related issues when they're older (6-12 years old). But the fact that she doesn't have any obvious bone deformities by 4-years old is a good sign. So, until something develops that we should worry about, we are going back to life as normal and placing it into God's hands. We know what to be looking for, but can't spend our days worrying about it.
It has been a test of faith for me. I have realized that it is easy for me to trust God with my own life, but harder to entrust my children's lives to Him. But when something like this comes along that is completely out of my control, all I can do is pray and trust Him. So... that's what I'm going to do. And I'm just very thankful that as things stand right now... everything is just fine.
3 comments:
You're faith is evident and demonstrated in how you handle situations like these. Evenso, God has made her in the image of Himself, so she is beautiful, precious and perfect in every way! I appreciate your sharing your life's journey with others, so we can be encouraged by your faith! I pray God blesses you and your family today. :)
I agree that it is very hard to hand over our children to God and leave them in His hands. As a parent it is easy to want to "fix" it ourselves and take care of everything on our own. But you are doing an amazing job! Good job mama!
Thanks for the update, Amy. I so often find that it is times like what you are going through becomes the time for a deeper lesson of trust--for what I thought was already heart knowledge to go a little deeper in me. Sounds like that is exactly what is happening with you. I'm glad we have a Heavenly Father who is there for us to trust with dear ones like precious Molly.
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